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　　三九養(yǎng)生堂記者 鄧肯·蓋伊 報道

精彩|　　主??(zhu)論??(lun)壇??(tan)現(xiàn)??(xian)場??(chang)正??(zheng)式??(shi)發(fā)??(fa)布??(bu)了??(le)由??(you)中??(zhong)國??(guo)罕??(han)見??(jian)病??(bing)聯(lián)??(lian)盟??(meng)牽??(qian)頭??(tou)制??(zhi)定??(ding)的??(de)《中??(zhong)國??(guo)罕??(han)見?(jian)病??(bing)行??(xing)動??(dong)倡??(chang)議??(yi)2030》??。??該?(gai)倡??(chang)議??(yi)是??(shi)社??(she)會??(hui)各??(ge)界??(jie)協(xié)??(xie)同??(tong)推??(tui)進??(jin)中??(zhong)國??(guo)特??(te)色??(se)罕??(han)見??(jian)病??(bing)防??(fang)治??(zhi)保??(bao)障??(zhang)方??(fang)案??(an)的??(de)行??(xing)動??(dong)建?(jian)議?(yi)??。倡??(chang)議?(yi)提??(ti)出??(chu)到??(dao)2030年??(nian)??，要??(yao)進??(jin)一??(yi)步??(bu)提??(ti)升??(sheng)我??(wo)國??(guo)罕??(han)見??(jian)病??(bing)早??(zao)發(fā)??(fa)現(xiàn)??(xian)、早??(zao)診??(zhen)斷??(duan)、早??(zao)治??(zhi)療??(liao)、有??(you)藥??(yao)用??(yong)、可??(ke)管??(guan)理??(li)、能??(neng)負??(fu)擔??(dan)的??(de)水??(shui)平??(ping)??，涵??(han)蓋?(gai)社??(she)會??(hui)關??(guan)注?(zhu)、防??(fang)控??(kong)篩??(shai)查??(zha)、診??(zhen)療??(liao)服??(fu)務??(wu)、患??(huan)者??(zhe)康??(kang)復??(fu)和??(he)政??(zheng)策??(ce)保??(bao)障?(zhang)五??(wu)個??(ge)方??(fang)面??(mian)??。　　焦??(jiao)雅??(ya)輝??(hui)表??(biao)示??(shi)?，未??(wei)來??(lai)將??(jiang)結??(jie)合??(he)第??(di)二??(er)批??(pi)罕??(han)見??(jian)病??(bing)目?(mu)錄??(lu)進??(jin)一??(yi)步??(bu)提??(ti)高??(gao)醫(yī)?(yi)務??(wu)人?(ren)員??(yuan)對??(dui)罕??(han)見??(jian)病??(bing)的??(de)辨??(bian)別??(bie)診??(zhen)治?(zhi)能??(neng)力?(li)；要??(yao)強??(qiang)化??(hua)醫(yī)??(yi)療??(liao)機??(ji)構??(gou)間??(jian)的??(de)協(xié)??(xie)同??(tong)配??(pei)合??(he)?，發(fā)?(fa)揮??(hui)牽??(qian)頭??(tou)醫(yī)??(yi)院??(yuan)的??(de)輻??(fu)射??(she)帶??(dai)動??(dong)作??(zuo)用?(yong)?，做??(zuo)好??(hao)罕??(han)見??(jian)病?(bing)的?(de)管??(guan)理??(li)和??(he)病??(bing)例??(li)登?(deng)記??(ji)?，調??(tiao)整??(zheng)完??(wan)善?(shan)罕??(han)見??(jian)病??(bing)診?(zhen)療??(liao)協(xié)?(xie)作??(zuo)網(wǎng)??(wang)；同??(tong)時??(shi)?，持??(chi)續(xù)??(xu)提?(ti)升??(sheng)罕??(han)見??(jian)病??(bing)患??(huan)者??(zhe)就??(jiu)醫(yī)??(yi)體??(ti)驗??(yan)?，以??(yi)患??(huan)者??(zhe)為??(wei)中??(zhong)心??(xin)?，打?(da)造??(zao)有??(you)溫??(wen)度??(du)的?(de)醫(yī)??(yi)療??(liao)服??(fu)務??(wu)??。?

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