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　　三九養(yǎng)生堂記者 鄧肯·蓋伊 報道

精彩|　　近?(jin)日??(ri)??，由??(you)中??(zhong)國??(guo)罕??(han)見??(jian)病??(bing)聯(lián)??(lian)盟??(meng)、中??(zhong)國??(guo)紅?(hong)十??(shi)字??(zi)基?(ji)金??(jin)會??(hui)、全??(quan)國??(guo)罕??(han)見??(jian)病??(bing)診??(zhen)療??(liao)協(xié)??(xie)作??(zuo)網(wǎng)??(wang)辦??(ban)公??(gong)室??(shi)等??(deng)共??(gong)同??(tong)主??(zhu)辦?(ban)的??(de)“2023年??(nian)中??(zhong)國??(guo)罕??(han)見??(jian)病??(bing)大??(da)會??(hui)”在??(zai)北??(bei)京??(jing)開??(kai)幕??(mu)??。??來??(lai)自??(zi)全??(quan)國??(guo)罕??(han)見??(jian)病??(bing)政??(zheng)策??(ce)制?(zhi)定??(ding)、臨??(lin)床??(chuang)診??(zhen)療??(liao)、藥??(yao)物??(wu)研??(yan)發(fā)??(fa)、藥??(yao)品??(pin)保??(bao)障??(zhang)等??(deng)的??(de)數(shù)??(shu)萬??(wan)名??(ming)同??(tong)道??(dao)和??(he)罕??(han)見??(jian)病??(bing)患??(huan)者??(zhe)在?(zai)線??(xian)上??(shang)線??(xian)下??(xia)參??(can)與??(yu)了??(le)會??(hui)議??(yi)???！　≈??(zhu)論??(lun)壇??(tan)現(xiàn)??(xian)場??(chang)正??(zheng)式??(shi)發(fā)??(fa)布??(bu)了??(le)由??(you)中??(zhong)國??(guo)罕??(han)見??(jian)病?(bing)聯(lián)?(lian)盟??(meng)牽??(qian)頭??(tou)制??(zhi)定??(ding)的??(de)《中??(zhong)國??(guo)罕??(han)見??(jian)病??(bing)行??(xing)動?(dong)倡??(chang)議??(yi)2030》??。??該?(gai)倡??(chang)議??(yi)是??(shi)社??(she)會??(hui)各??(ge)界??(jie)協(xié)??(xie)同??(tong)推??(tui)進??(jin)中??(zhong)國??(guo)特??(te)色??(se)罕??(han)見??(jian)病??(bing)防??(fang)治??(zhi)保??(bao)障??(zhang)方??(fang)案??(an)的??(de)行??(xing)動??(dong)建??(jian)議??(yi)??。倡??(chang)議??(yi)提??(ti)出??(chu)到??(dao)2030年??(nian)??，要??(yao)進??(jin)一??(yi)步??(bu)提??(ti)升??(sheng)我??(wo)國??(guo)罕??(han)見??(jian)病??(bing)早??(zao)發(fā)??(fa)現(xiàn)??(xian)、早??(zao)診??(zhen)斷??(duan)、早??(zao)治??(zhi)療??(liao)、有??(you)藥??(yao)用??(yong)、可??(ke)管??(guan)理??(li)、能??(neng)負?(fu)擔??(dan)的?(de)水??(shui)平??(ping)??，涵??(han)蓋??(gai)社??(she)會??(hui)關??(guan)注??(zhu)、防??(fang)控??(kong)篩??(shai)查??(zha)、診??(zhen)療??(liao)服??(fu)務??(wu)、患??(huan)者??(zhe)康??(kang)復??(fu)和??(he)政??(zheng)策??(ce)保??(bao)障??(zhang)五??(wu)個?(ge)方??(fang)面??(mian)??。

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