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　　三九養(yǎng)生堂記者 鄧肯·蓋伊 報(bào)道

精彩|　　主??(zhu)論??(lun)壇??(tan)現(xiàn)??(xian)場??(chang)正??(zheng)式??(shi)發(fā)??(fa)布??(bu)了??(le)由??(you)中??(zhong)國??(guo)罕??(han)見??(jian)病??(bing)聯(lián)??(lian)盟??(meng)牽??(qian)頭??(tou)制??(zhi)定??(ding)的??(de)《中??(zhong)國??(guo)罕??(han)見??(jian)病??(bing)行??(xing)動??(dong)倡??(chang)議??(yi)2030》??。??該??(gai)倡??(chang)議??(yi)是??(shi)社??(she)會??(hui)各??(ge)界??(jie)協(xié)??(xie)同??(tong)推??(tui)進(jìn)??(jin)中??(zhong)國??(guo)特?(te)色??(se)罕??(han)見?(jian)病??(bing)防??(fang)治??(zhi)保??(bao)障??(zhang)方??(fang)案??(an)的??(de)行??(xing)動??(dong)建??(jian)議??(yi)??。倡??(chang)議??(yi)提??(ti)出?(chu)到??(dao)2030年??(nian)??，要??(yao)進(jìn)??(jin)一??(yi)步??(bu)提??(ti)升??(sheng)我??(wo)國??(guo)罕??(han)見??(jian)病??(bing)早??(zao)發(fā)??(fa)現(xiàn)??(xian)、早?(zao)診??(zhen)斷??(duan)、早??(zao)治??(zhi)療??(liao)、有??(you)藥??(yao)用?(yong)、可??(ke)管??(guan)理??(li)、能?(neng)負(fù)??(fu)擔(dān)??(dan)的??(de)水??(shui)平??(ping)??，涵?(han)蓋??(gai)社??(she)會??(hui)關(guān)??(guan)注??(zhu)、防?(fang)控??(kong)篩??(shai)查??(zha)、診??(zhen)療??(liao)服??(fu)務(wù)??(wu)、患??(huan)者??(zhe)康??(kang)復(fù)??(fu)和??(he)政??(zheng)策??(ce)保??(bao)障??(zhang)五??(wu)個(gè)??(ge)方??(fang)面??(mian)???！　??(guo)家?(jia)衛(wèi)??(wei)生??(sheng)健?(jian)康?(kang)委??(wei)醫(yī)??(yi)政??(zheng)司??(si)司??(si)長?(chang)焦??(jiao)雅??(ya)輝??(hui)在??(zai)開?(kai)幕??(mu)式??(shi)中?(zhong)介??(jie)紹??(shao)??，國??(guo)家??(jia)衛(wèi)??(wei)生??(sheng)健??(jian)康??(kang)委??(wei)深??(shen)入??(ru)貫??(guan)徹??(che)黨??(dang)中??(zhong)央??(yang)國??(guo)務(wù)?(wu)院?(yuan)決??(jue)策??(ce)部??(bu)署??(shu)??，圍?(wei)繞?(rao)人?(ren)民??(min)群?(qun)眾??(zhong)看??(kan)病?(bing)就??(jiu)醫(yī)??(yi)“急??(ji)難??(nan)愁??(chou)盼?(pan)”的??(de)問??(wen)題??(ti)開??(kai)展??(zhan)一??(yi)系??(xi)列??(lie)工?(gong)作??(zuo)??，推??(tui)動??(dong)提??(ti)升?(sheng)罕??(han)見??(jian)病??(bing)的??(de)管??(guan)理??(li)水??(shui)平??(ping)??。??2023年??(nian)9月??(yue)??，國??(guo)家??(jia)衛(wèi)??(wei)生??(sheng)健??(jian)康??(kang)委??(wei)聯(lián)??(lian)合??(he)6部??(bu)委??(wei)發(fā)??(fa)布??(bu)《第??(di)二??(er)批??(pi)罕??(han)見??(jian)病??(bing)目??(mu)錄??(lu)》??，罕??(han)見??(jian)病??(bing)目??(mu)錄??(lu)病??(bing)種??(zhong)增??(zeng)加??(jia)至??(zhi)207種??(zhong)；通??(tong)過??(guo)建??(jian)立??(li)診?(zhen)療??(liao)協(xié)??(xie)作?(zuo)網(wǎng)?(wang)、制??(zhi)定??(ding)診??(zhen)療??(liao)規(guī)?(gui)范??(fan)、開??(kai)展??(zhan)醫(yī)??(yi)務(wù)??(wu)人??(ren)員??(yuan)培??(pei)訓(xùn)??(xun)、推??(tui)廣??(guang)多??(duo)學(xué)??(xue)科?(ke)會??(hui)診?(zhen)模??(mo)式??(shi)、建??(jian)立??(li)罕??(han)見?(jian)病??(bing)質(zhì)??(zhi)控??(kong)中??(zhong)心??(xin)、規(guī)??(gui)劃??(hua)國??(guo)家??(jia)罕??(han)見?(jian)病??(bing)醫(yī)??(yi)學(xué)??(xue)中??(zhong)心??(xin)并??(bing)制??(zhi)定??(ding)設(shè)??(she)置??(zhi)標(biāo)??(biao)準(zhǔn)??(zhun)??，全??(quan)面?(mian)健??(jian)全??(quan)罕??(han)見??(jian)病??(bing)診??(zhen)療??(liao)體??(ti)系?(xi)并??(bing)提??(ti)升??(sheng)救??(jiu)治??(zhi)能??(neng)力??(li)；截??(jie)至??(zhi)2023年??(nian)9月??(yue)??，我??(wo)國??(guo)已??(yi)累??(lei)計(jì)??(ji)登??(deng)記?(ji)約??(yue)78萬??(wan)例??(li)罕??(han)見??(jian)病??(bing)病??(bing)例??(li)??，為??(wei)完??(wan)善??(shan)罕?(han)見??(jian)病??(bing)管??(guan)理??(li)制??(zhi)度??(du)提??(ti)供??(gong)了??(le)科??(ke)學(xué)??(xue)依??(yi)據(jù)??(ju)??。

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